Why would anyone want to write a blog focusing on chronic illness?
It’s a valid question, and one I have been asked more than once. Of course, the inquiry more often than not comes from those who don’t deal with any of the conditions I write about. Ironically, that’s the answer to one of three main reasons why I created ‘A Life Well Red’, and continue to nurture it’s growth.
Why Write A Blog On ‘Invisible’ Chronic Illness?
Awareness ~ The reproach of ‘Invisible’ Chronic Illness (characterized by the common trait that those who suffer them ‘do not look sick’) is very real. Too often, patients are dismissed as ’emotionally unstable hypochondriacs’ looking for attention. A stigma perpetuated by many in the medical field who refuse to acknowledge the legitimacy of many of these diseases. However, change is in the air. Discoveries within the medical field continue to advance, and the reality of these chronic conditions is coming to light. Being a voice in that wilderness to help change how people with chronic disease are perceived, and to bring validation to our experience is one of my main goals.
Giving ~ When I have conversations with younger people regarding their beginning journeys into the ‘world of career’, I share with them one main piece of advice; know yourself and what you would truly love to do. Then, pursue that. Really, I believe it to be that simple. I floundered from one ill-suited job to the next, never finding work that meant more to me than a paycheck at the end of 2 weeks. It was not until I discovered that for me, if I am not doing something that makes a difference in people’s lives, a change for the better, than what I accomplish is simply a meaningless ‘waiting for the hours to tick by’. Hearing from others that in some small way the connection I make with them through this site every week has helped them on their journey with chronic illness, lets me know I am on the right path.
Receiving ~ I am learning how to navigate the waters of ‘invisible’ chronic illness right alongside everyone else. The information I receive from others, along with the sense of intimacy that is born out of shared hardship, brings healing to me in ways that go beyond the physical. Even on my worst flare days, my condition is improved by what this community gives back to me.
I was recently nominated for ‘Best In Show: Blog’, and ‘Health Activist Hero’ at the WEGO Health Activist Awards.
If you enjoy ‘A Life Well Red’ as much as I enjoy the privilege of writing it, I would LOVE for you VOTE FOR ME below by clicking on the ‘endorse me now’ button!
Thank you all again so much for your readership, as well as your friendship ~
Remember: “ALL Y’ALL ‘CHRONIC BAD-ASSES’ ROCK!”