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Why Write A Blog On ‘Invisible’ Chronic Illness ?

Why would anyone want to write a blog focusing on chronic illness?

It’s a valid question, and one I have been asked more than once. Of course, the inquiry more often than not comes from those who don’t deal with any of the conditions I write about. Ironically, that’s the answer to one of three main reasons why I created ‘A Life Well Red’, and continue to nurture it’s growth.

Why Write A Blog On ‘Invisible’ Chronic Illness?

  1. Awareness ~ The reproach of ‘Invisible’ Chronic Illness (characterized by the common trait that those who suffer them ‘do not look sick’) is very real. Too often, patients are dismissed as ’emotionally unstable hypochondriacs’ looking for attention. A stigma perpetuated by many in the medical field who refuse to acknowledge the legitimacy of many of these diseases. However, change is in the air. Discoveries within the medical field continue to advance, and the reality of these chronic conditions is coming to light. Being a voice in that wilderness to help change how people with chronic disease are perceived, and to bring validation to our experience is one of my main goals.

  2. Giving ~ When I have conversations with younger people regarding their beginning journeys into the ‘world of career’, I share with them one main piece of advice; know yourself and what you would truly love to do. Then, pursue that. Really, I believe it to be that simple. I floundered from one ill-suited job to the next, never finding work that meant more to me than a paycheck at the end of 2 weeks. It was not until I discovered that for me, if I am not doing something that makes a difference in people’s livesa change for the better, than what I accomplish is simply a meaningless ‘waiting for the hours to tick by’. Hearing from others that in some small way the connection I make with them through this site every week has helped them on their journey with chronic illness, lets me know I am on the right path.

  3. Receiving ~ I am learning how to navigate the waters of ‘invisible’ chronic illness right alongside everyone else. The information I receive from others, along with the sense of intimacy that is born out of shared hardship, brings healing to me in ways that go beyond the physical. Even on my worst flare days, my condition is improved by what this community gives back to me.

Why Write A Blog On 'Invisible' Chronic Illness ?

~

I was recently nominated for ‘Best In Show: Blog’, and ‘Health Activist Hero’ at the WEGO Health Activist Awards.

If you enjoy ‘A Life Well Red’ as much as I enjoy the privilege of writing it, I would LOVE for you VOTE FOR ME below by clicking on the ‘endorse me now’ button!

Thank you all again so much for your readership, as well as your friendship ~

Remember: “ALL Y’ALL ‘CHRONIC BAD-ASSES’ ROCK!”

~

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4 Comments

  • Reply
    Jackie
    September 13 at 12:25 pm

    I’m so grateful for invisible illness blogs like yours. The only person I feel like I can really talk to about my fibro is my grandmother since she also has it, but even so after awhile I feel like I’m whining or complaining and bringing her down (this is all in my head but I don’t like to be a burden). I love blogs such as yours because I can always find support with like minded people who don’t think I’m just being a big baby lol. Invisible illnesses are scary, it’s nice to have a safe place to turn to 🙂 Keep up the good work!

    • Reply
      kristine
      September 15 at 9:11 am

      Thanks so much Jackie! I know just what you mean, we so often wear out the people around us. It’s good to have ‘community’ that understands. Thanks again for the encouragement 😉

  • Reply
    Nikki
    September 20 at 8:22 am

    YEAH! Congrats! I am so proud to call you friend. Your blog is a meeting place and a comfort to so many. The hardest part about a chronic illness is that others don’t or can’t “get it”. Sadly, until I got sick I didn’t “get it” either. Since I look okay most people assume that, even when I try to explain, it doesn’t stick. They don’t get why I can’t do things. Or why one week I could go to an event, but the next I can’t. Your blog gives me a safe place to go, you understand. I can bond with you and the others here since I have no one in my immediate circle with my same issues.

    I voted for you on both issues, hopefully through that avenue even more people will find you. We all need a safe place, thank you for creating one!
    Nikki recently posted…Stunning Shots – HydrangeaMy Profile

    • Reply
      kristine
      September 21 at 10:18 am

      Sweet as always Nikki! I’m just like you, I didn’t ‘get it’ until I got sick too. Thank you so much for your encouraging comments every week ♥ You rock my friend 😉 ♥♥♥

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