all Chronic Fatigue/M.E. Fibromyalgia

Treating Fibromyalgia With LDN ~ An Update

December 22

Ever wondered wether or not Low Dose Naltrexone is an effective treatment for Fibromyalgia symptoms?

Treating Fibromyalgia with LDN is something I have been kicking around for about a year now (previous posts: Better Days Ahead & Re-Visiting Low Dose Naltrexone). When I first heard of this compound drug, I was taking another medication, and wanted to finish it before starting anything new. I also wanted my system to be relatively clean so that I could feel LDN’s full effect. It has been approximately 1 1/2 months now since I started on LDN for my FMS symptoms. I started out at 1.5 mg for 2 weeks, went to 3mg for 2 weeks, and have been taking 4mg for 8 days.

A few important points regarding what Low Dose Naltrexone in NOT:

  • LDN is NOT a ‘miracle drug’. It works to repair the immune system, and bring the body back to a relatively healthy homeostasis. Both of these take time. I have heard of people experiencing immediate results, but have also known others whose systems can take several months to begin to show results.

  • LDN is NOT a drug for the impatient. Depending on: other medications a person is on, what condition/conditions are being treated, and if any breaks are needed for necessary opioid use, LDN can be a slow treatment that cause some to come to the conclusion that it does not work for them

  • LDN must NOT  be used in conjunction with opioids. Because of LDN’s inherent ‘opioid receptor blocking’ mechanism, it has contraindications with certain pain relievers. However, there are compatible drugs that can be taken alongside LDN for pain relief. A few of these are: aspirin/ibuprofen/Advil/medical marijuana. Check with a licensed physician on what can, or cannot be taken while on LDN.

  • LDN is NOT limited to treating only a few chronic illnesses. LDN is successfully being used to treat a LARGE number of conditions, among them (but not limited to) are: various cancers, HIV, depression, IBS, Parkinson’s, Thyroid problems, and many more…

Below is a short video that will give an excellent overview of LDN along  with its history and beginnings (watch to the end, where he will talk specifically about FMS and other chronic illness): 
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LDN is NOT limited to treating only a few chronic illnesses, but many conditions! Click To Tweet

 

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The following brief video addresses how LDN specifically works to help with pain relief in relation to chronic illness:

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So, all that being said, what has my personal experience been taking Low Dose Naltrexone so far?

Treating Fibromyalgia With LDN ~ An Update

  • Overall? Excellent! I have noticed a decrease in my pain levels (which were beginning to ratchet back up since finishing a previous medication), as well as a definite increase in energy levels.

  • My mood seems to be on a more ‘even keel’ than before. Lessening of ‘low’ emotions , at times mild feelings of euphoria, and a general over all sense of well-being.

  • I have experienced the full effect so far, when I increased my dosage to 4mg. LDN has been found to be most effective between 3mg – 4.5mg depending on the individual, and the condition being treated.

  • I have personally found a significant decrease in alcohol tolerance. I had one glass of wine, and felt like I was going to throw up. Use of alcohol tolerance varies among people taking LDN. Kind of a bummer since I enjoy an occasional drink or two, but definitely worth the sacrifice!

Low Does Naltrexone is proving excellent as a treatment for my FMS symptoms! Click To Tweet

Treating Fibromyalgia With LDN ~ An Update

I have included a link here to a LDN/Fibromyalgia ‘Success’ story: “Naltrexone ‘Changed Life’ Of A Fibromyalgia Patient”

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8 Comments

  • Reply Jody December 22 at 12:20 pm

    I appreciate your thoughtful post and results of using LDN for Fibromyalgia. At the onset of Rheumatoid Arthritis 4 years ago, I feared trying the “heavy” arthritis meds. I feared they would make me feel ill, and at the time I was caregiver to a son with heart failure (he is a bit stronger now). My primary care doctor suggested LDN. I gave this a go for about 8 months. Basically, it was completely ineffective for me, and I wish I’d treated my RA aggressively from the start. My hands rapidly showed changes from RA, my wrists have knots, and I have many other problem areas (and ribs have constant inflammation). Fibromyalgia was added to my diagnosis a year ago. Perhaps it alone would have responded better to LDN. Like diet, disease is particular to a specific body, and even within families, needs and tolerances are different. Don’t be afraid to trust your own instincts with the guidance of your doctor. 🙂

    • Reply kristine December 22 at 12:43 pm

      Sorry to hear about your experience Jody. There have been people with RA who have responded positively with LDN. But, you are right, everyone is different. So glad to hear your son is doing better! 🙂 Have a great Christmas!

  • Reply Cat aka TimeyWimeyGirl7 December 22 at 12:43 pm

    Thank you so much for sharing. I have a couple questions about you personally if you don’t mind. How severe is your Fibro? Were you able to work before the LDN? After? What are the expectations of the results? My fibro is very severe. It was caused by nerve damage that became exteremly hypersensitive which in turn has made my entire nervous system hypersensitive….voila Fibro! I have been unable to work since 2013 and am basically home bound at this point. Going to the store to do a small grocery is enough to set off a bad flare for days. I do most of my ordering online. So when considering LDN what am I looking at? (Recognizing that everyone is different and my results may differ from yours).

    • Reply kristine December 22 at 12:49 pm

      Hi Cat! I understand your concerns, but you would really need to speak with a physician regarding LDN for you personally. I recommend also joining a LDN private group on FB, there are many people on there with all sorts of conditions taking LDN. My FMS can range from moderate to severe depending on the day. I have worked from home for years, but I can say without a doubt that I would have been unable to hold down a full time job on the outside. Just as it is with so many. Talk to your Dr., and if he is unwilling to discuss it, there are other resources online (like the LDN Network). Good Luck!
      P.S. I have included a link at the bottom of the above post of a FMS/LDN success story. Check it out!

  • Reply Valerie December 26 at 2:09 pm

    Thank you so much for sharing your experience with this. I am currently taking LDN 4mg and finding it does take the edge off of my pain. Like you said it is not a miracle cure, but it does help! This is such a helpful post.

    • Reply kristine December 27 at 4:10 pm

      Wonderful! Thank you for taking the time to leave your encouragement! I appreciate it, and believe sharing our ‘positive’ experiences with LDN is SO important 🙂 Have a fantastic one Valerie!

  • Reply Katie Jenkins December 30 at 11:17 pm

    Oh my gosh, Kristine. I have to tell you, I got goosebumps when I read how you were responding to the LDN. I am truly ecstatic to hear it’s helping with your pain, not to mention increase your energy!!!

    I only wish you were feeling SO good you were busting out the tumbling tricks around your house…BUT, that might take a few more months of being on the meds before that happens. 😉

    You popped in my brain this evening. I was wondering how you were because I hadn’t received any of your posts in quite a while.

    Then I remembered rummaging through my junk mail several months ago and seeing a post of yours chilling in there. Well, lo and behold, I open my junk folder just now and there are your posts! I know I had put you on the safe list. Oy vey.

    Needless to say, I have a few posts of yours to catch up on.

    I hope your holidays have been fantastic so far, Kristine! And I hope your wine-free New Year’s Eve kicks some super booty! Whoop whoop!

    Again, I am thrilled you are feeling good things from LDN!!!
    Katie Jenkins recently posted…Discover Which Type of Original Thinker You Are by Taking This Quiz!My Profile

    • Reply kristine December 31 at 12:30 am

      LOL! Oh NO! Not the ‘Junk Mail’! 🙂 LOL! It’s good to hear from you Katie! 😉 My holidays were excellent, how were yours? We had a nice relaxing time without too much ‘hula baloo’.
      As fas as the LDN goes, it really has made a great difference. Pain levels definitely decreased and energy levels increased. YAY!
      Have a wonderful week Katie! Heading over to take your ‘quiz’! 😉

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