all Chronic Fatigue/M.E.

‘The Rabbit Died’…How To Feel No ‘Shame’ When Diagnosed With CFS

July 13

rabbit     Chronic Fatigue Syndrome and Fibromyalgia share many common factors.   There are many in the medical community that believe neither one of these conditions are real.  Fortunately the evidence is beginning to outweigh opinion, and the number of neigh-sayers are decreasing daily. Let us not forget that there was a time in history when schizophrenia was unknown, and when the concept of little bugs that can make people sick (germs) where laughable in the orthodox medical sphere.  My point being, these things obviously existed even though they were unrecognized and mislabeled.  The same will eventually be true of many of these chronic conditions in spite of the frustrating lack of biomarkers which help to legitimize a disease.

How to feel 'no shame' with a CFS diagnosis

     The main difference between CFS and FMS seems to be pain.  While there are many overlapping symptoms in both, FMS has the cornerstone on pain, while CFS can boast it’s  main attribute as fatigue.  Now, the problem with the term Chronic Fatigue Syndrome is the negative connotation it has among many people.  Some will say, “Yeah, yeah, I get tired a lot too.  Everyone gets ‘fatigued'”, or “That’s just a crutch lazy people use, they just need to exercise more, eat better, ect.”.  When I first heard the diagnosis CFS given to me by my physician, I actually experienced shame.  I thought, “That’s it?  Isn’t that the ‘made-up’ condition used by hypochondriacs to explain nervous disorders?”  “How can I tell people that’s what I have, they won’t take my condition seriously, it’s not a ‘legitimate’ disease.”  Even though I knew what I had was real, I knew that what I had been experiencing for years was authentic and at times fairly debilitating.

    tired

       Needless to say I am singing a new tune these days.  One woman said of CFS, “It’s not just being tired.  It was as if someone had drained all the blood out of me and replaced it with cement.”  Yes, that’s it exactly.  I can remember times of falling into a chair and feeling like my limbs weighed a thousand pounds each.  Sleeping is usually the cure for being ‘tired’, there is no cure for the ‘immense fatigue’ that occurs during a CFS flare up.  There are many other symptoms of  CFS, I am merely focusing on the fatigue aspect here.  Getting the word out and taking the stigma off will further CFS’ acceptance.

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Recipe Of The Week

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~Protein Punch Probiotic~

(popularly known on Pinterest lately as ‘Cookie Dough Yogurt’,… yeah, who are we kidding here?  It doesn’t taste like cookie dough, but it is good)

yogurt1

~container of favorite vanilla Greek yogurt

~1 tbsp. peanut butter

~1/2 tsp vanilla extract

~3 tsp raw organic honey

~bittersweet chocolate chips

Mix and enjoy.

yogurt2

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21 Comments

  • Reply Lucy July 13 at 11:30 pm

    This quote;

    ..”It was as if someone had drained all the blood out of me and replaced it with cement..”

    was really enlightening. I’ve been reading about CFS/Fibro for some audio books I’ve been recording, but this sentence taught me more than all of their chapters combined.

    Wishing you all the best.

    • Reply kristine July 13 at 11:36 pm

      Thank you Lucy. It is a weird sensation. Keep me informed on the audio books your recording! 🙂

  • Reply Claire July 14 at 10:28 pm

    Hey, Thankyou for sharing! I was aware that this wasnot mere tiredness but was still very unaware of the severity of the accompanying symptoms. Thanyou for the information. #Sharewithme

    • Reply kristine July 15 at 12:51 am

      Your welcome Claire, thanks so much for stoppin’ by! 😉

  • Reply Ali July 14 at 10:41 pm

    My very good friend suffers and it frustrates the hell out of her, she’s tried everything and still is. If you ever find something which helps please share it on her! #sharewithme

    • Reply kristine July 15 at 12:50 am

      Will do! 🙂 Give her my best!

  • Reply jill conyers July 15 at 3:14 am

    Cookie dough yogurt? I’ve seriously been missing out. Yum!

  • Reply Jennifer July 15 at 1:21 pm

    Thanks so much for posting this and for opening a discussion about it. I have known two people who were diagnosed with CFS and I know neither of them were “lazy” or “hypochondriacs”, but still the presumption (and prejudice) persists. I hope you’re receiving good support from your doctor? Thanks for sharing on #sharewithme!

    • Reply kristine July 15 at 2:59 pm

      Thanks Jennifer, yes, I have an excellent physician. I do love talking and blogging about these chronic illnesses, because so many times people will judge a subject out of ignorance (I’m guilty of this too! Who isn’t?). However, when there is openness and knowledge of the facts, that’s when there is opportunity for understanding and change. 🙂

  • Reply Jenny July 15 at 7:47 pm

    Good point and I love how you explain yourself and what you go through so people really understand it’s real and how serious it is to have Fibro. Great recipe at the end as always. Thank you so much for linking up to Share With Me #sharewithme

    • Reply kristine July 15 at 10:33 pm

      Thanks Jenny! 🙂

  • Reply Marla July 17 at 7:05 am

    Anything that a conventional doctor can not see through an xray or doesn’t show in a specific test seems to be always considered to be something in the patients head – can’t be real! It’s real if you have the pain and are so tried that you can’t walk across the room and yet you still can’t sleep. At least now they have a saliva test that they can test the adrenal glands for CFS, but I not sure if conventional drs perform it or just naturopaths and alternative medicine drs.
    What I find really sad is that so many people think if you look okay as there are no bruises, broken bones they you are okay – not understanding that you can be in agony physically and emotionally. Fibro can cause so much pain and truly believe that Fibro and CFS are linked and well as MCS.
    Thanks for sharing on valuable information on Real Food Fridays I always look forward to see what you will be posting because I usually can personally relate to it.
    I love your recipe too – sound delicious and healthy. Pinned

    • Reply kristine July 17 at 10:28 am

      Very true Marla! And one of the worst parts of the whole deal is when the Dr.s get that ‘look’ in their eye. You know they’ve stopped taking you seriously and are thinking, “hypochondriac”. Finding the one who ‘believes’ you and takes you seriously is invaluable!

  • Reply Deborah Brooks July 20 at 9:27 am

    I’ve never seen pnb in with yogurt. Interesting! Will have to give it a try. Thanks for linking up for meatless Monday today!

    • Reply kristine July 20 at 5:00 pm

      Thank you Deborah!

  • Reply Miz Helen July 20 at 2:55 pm

    This looks like a great treat that we would just love. I appreciate you sharing this awesome post with Full Plate Thursday and have a great day.
    Come Back Soon!
    Miz Helen

    • Reply kristine July 20 at 5:01 pm

      Thank you Miz Helen!

  • Reply Deborah Davis July 20 at 7:50 pm

    Who can resist this creamy delectable treat! Thanks for sharing your Protein Punch Probiotic~recipe with us on the Healthy Happy Green and Natural Party Blog Hop. I’m pinning and sharing.

    • Reply kristine July 20 at 8:57 pm

      Thanks Deborah! It’s seriously addicting! 🙂

  • Reply Brandi Clevinger July 23 at 5:14 pm

    I’m glad you addressed the difference between CFS and fibro. I know I get tired a lot, but I was wondering how different from CFS that fibro tired really is. Now I see. Thank you so much for explaining the difference.

    Thanks for sharing at #ChronicFridayLinkup! This was pinned to the Chronic Friday Linkup board at http://www.Pinterest.com/beingfibromom

    • Reply kristine July 23 at 7:37 pm

      Yeah, it’s tricky, they all overlap in so many places. Thanks Brandi! 😉

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