10 In all/ Health & Wellness

The Spoonie’s Super Power ~ Master Of Disguise

Have you discovered your ‘super power’ yet?

The Spoonie’s super power lies in being a ‘Master of Disguise’. When you are chronically ill, you soon learn to present yourself in a way that may not be completely honest. This is, however, a necessary and effective tool of survival.

I realized the other day just how often I employ this tactic. I was being asked various questions about my health, and for reasons I won’t go into, I was not comfortable with this person having that information. At the time, I was in a full-blown EBV flare, fighting a hellacious stomach virus (that BTW, is on day 7 {kill me now…}), and feeling so dizzy, I thought I might topple over in my chair at any moment.

I doubt this person had any clue as to how I really felt. I’ve become that good at hiding the reality of my physical condition. This is a skill that is honed over time in the chronically ill/pain community. It’s simply impossible to function in society (and many times even in our own homes), and be completely genuine about how we feel. Sad it may be, but in order to not drive everyone away, it is necessary to ‘camouflage’ much of what we are experiencing in the day-to-day.

The Spoonie's super power lies in being a 'Master of Disguise'. Click To Tweet

 

To what degree this happens, varies from person to person. There are some levels of pain and discomfort that go beyond any ‘masking’ abilities. Just the other night, I was so miserable and worn down, I just didn’t care what anyone thought anymore. I just let the moaning fly and ‘be damned the consequences’.

Most of us stay at a certain level where we are able to cope. At least, I truly hope so. If you are someone who has crossed the threshold into: “I feel like sh**, and I can’t begin to even give a damn what anyone thinks anymore”, than baby, you have every ounce of my sympathy and compassion.

The Spoonie’s Super Power ~ Master Of Disguise…Ideas On How To Cope With Your ‘Chronic Reality’

  • Private Chronic Illness Facebook Groups ~ Find a ‘private’ group on Facebook, and ask to be added. No one can see your interactions in these groups except for members (your comments are private too). I have witnessed many people who were able to express themselves in a way they simply could not do with those who were not experiencing the struggles they endure everyday.

  • Blogs Specific To Your Chronic Illness ~ One of the greatest resources for us here in the ‘Chronically Ill Community’, are the websites devoted to them. Check out the Chronic Illness Bloggers Network, here you can find the blog that pertains to the illness you deal with (like mine! ?).

Ideas On How To Cope With Your 'Chronic Reality' Click To Tweet

The Spoonie's Super Power Master Of Disguise

 

  • This post was shared on these awesome sites!

Enjoy 'ALWR' ?...Click here to SUBSCRIBE today and receive a FREE download & NEVER miss a post again!

 

Vertigo Caused By Dislodged Ear Crystals? ~ Simple Exercise To Re-Set Calcium Crystals In Ear
The Unglamorous Life Of A Spoon & Why My Blog Will Never Be 'Sexy'

You Might Also Like

10 Comments

  • Reply
    Cat aka TimeyWimeyGirl7
    August 1 at 12:27 pm

    As usual you have hit the nail on the head, I was well beyond that point this past weekend and had no choice but to keep going. I had to fly down to Florida for my cousins funeral. She was in a car accident last Friday so it’s still a complete shock to us all. We flew out on Friday. Left the house at 7 am & I don’t have to tell you how hard even that first step was. When we arrived at LGA we discovered our flight had been canceled and the one they rescheduled us on originally arrived at midnight 2 hours away from
    Our final destination. We were able to switch it but we still didn’t arrive till 10 pm and had a 45 minute drive to the hotel. Exhaustion & agony are too gentle of words to express how I felt …..& the funeral was Saturday. I didn’t want to scare the kids so I sucked it up as much as I could and used my superpower. We got home yesterday and I have basically been sleeping on and off since we arrived on the first plane yesterday till 11 am
    Today. I’m a little better now but still exhausted. All I can hope now is that I get better & through this flare before we move in 2 weeks. LMFAO.

    • Reply
      kristine
      August 1 at 6:17 pm

      Oh Cat! I am so sorry for your loss. Glad you got some time to rest, please take good care of yourself and hang in there ♥♥♥

  • Reply
    Stephen
    August 3 at 1:34 am

    Hi Kristine,

    Slightly off-topic here. I am putting together a post about Blogging for chronic illness and I hope to include your name and Blog in the article.

    Would you be agreeable to my doing so, and would you provide me with your full name so that the inclusion would be accurate and meaningful?

    thank you

    Stephen Walker (Stephen’s MS Journey)
    Stephen recently posted…Fitness, Nutrition, Mind; the keys to overcoming chronic illnessMy Profile

    • Reply
      kristine
      August 3 at 9:14 am

      Hi Stephen! Sure, I will email you my info. Thank you! 🙂

  • Reply
    Becky @ vintagebeckym
    August 7 at 9:26 am

    Something I just want to physically punch people when they say “OH, you don’t look sick”. I never, ever would because they just don’t understand what it takes for you to look not sick. There is a reason we never meet for coffee in the morning, but always for lunch. Thank you so much for sharing. It helps to read the words that you are thinking in your head.
    Becky @ vintagebeckym recently posted…Taco Seasoning–Easy to Make YourselfMy Profile

    • Reply
      kristine
      August 7 at 12:41 pm

      HAHA! Thanks Becky, I know how you feel 😉

  • Reply
    Nikki
    August 9 at 1:45 pm

    Kristine, I hope that by this time you are feeling much better. I sure hate getting to the point of having to be on bedrest, but there is always so much to do and get done that it happens. And then I lose more time. I really try to stay within my boundaries, but there are times when it’s impossible. It is true, we wear a mask, at all times, and we pretend that we are ok. But it makes life easier in the end, for us and for those around us. Doesn’t it?
    Nikki recently posted…Stunning Shots – Delicate Pink RoseMy Profile

    • Reply
      kristine
      August 10 at 9:05 am

      Hi Nikki, yes it does make it easier. I had someone recently say, “Oh, that sounds ‘healthy'” when I told them not to mention to ‘D’ that I was sick again (I picked up a 3rd issue that piggybacked onto the two I was already dealing with. Such is life with a compromised immune system). I said, “Hey, when you’re chronically ill, you learn to keep a lot to yourself bacause it begins to ‘wear’ on the relationsip.”
      ‘Healthy’ or not, that is a fact. If I voiced how I was feeling all the time, I would have a whole other set of problems on my hands. Thanks Nikki, I always appreciate your comments and understanding every week!♥♥♥

  • Reply
    Lee at FBD
    August 10 at 11:53 pm

    Yeah! I have a super power!

  • Leave a Reply to Becky @ vintagebeckym Cancel Reply

    CommentLuv badge

    Read previous post:
    The Unglamorous Life Of A Spoon & Why My Blog Will Never Be ‘Sexy’

    Yeah, there's just really nothing 'sexy' about a chronic illness blog...which then got me thinking about utensils (What?). Assuming you...

    Close