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Low Dose Naltrexone For Fibromyalgia Symptoms ~ A Honest Review

January 31

Time for another update on my ‘adventures with LDN’!

It has been three months now since I started taking Low Dose Naltrexone for Fibromyalgia Symptoms. LDN is a cumulative drug, therefore it can take several months to feel its full effect. Because everyone is different though, LDN’s effective time will vary in each individual.

I was fortunate to begin feeling Β the drug’s effects right away. Although, I was careful not to necessarily attribute feeling better to the LDN alone. There are so many variables involved when it comes to the worsening or improving of Fibromyalgia symptoms, that it is important to tread carefully when feeling better. How many of us have thought we ‘found what works’, or that the FMS had gone away, only to get hit with a massive flare that throws all that new-found hope out of the window.

How many of us have thought we 'found what works', only to get hit with a massive 'flare'~ Click To Tweet

Low Dose Naltrexone For Fibromyalgia Symptoms ~ A Honest Review

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Low Dose Naltrexone For Fibromyalgia Symptoms ~ A Honest Review ~ Now, here’s the deal with LDN:

  • It is NOT a ‘pain reliever’, although it does ‘manage’ pain over time by working to shut down opioid receptors in the brain for brief periods. This creates an ‘uptake’ effect which essentially ‘tricks’ the brain into producing more endorphins and serotonin in order to make up for the ‘down time’.

  • As a result of how it works, it cannot be expected to work as a pain reliever per se. It helps the body to create and bring its own natural pain relieving chemicals back to homeostasis, which in turn improves pain over time.

  • Many people give up on LDN due to its unpredictable time frame of effectiveness. It is often assumed ‘it doesn’t work me’. There is also the issue of finding the right dosage for your body. The ‘average’ isΒ 3mg, with dosage usually maxing out at 4.5mg (although many people go lower or higher).

Although I am still being cautious at this point to attribute all of my improvement to LDN, I will say that I have not changed my healthcare routine over the last 3 months other than taking this compound drug.

I feel fantastic! I have been able to do things that I was previously unable to before. I have: painted my house, begun to prepare for my chicken coop, and built a garden with my son. All of this withoutΒ being thrown into a ‘flare’. My pain levels are holding steady at 1-3Β on my pain scale (whereas before LDN I was on average 6-8).

LDN won't be found at the corner drug store (spoiler alert: That's actually a REALLY good thing!) Click To Tweet

In my next post, I will go into more information regarding how the drug is regulated, what to expect when approaching your doctor about LDN, and why LDN won’t be found at the Walgreen’s on the corner (spoiler alert: That’s actually a really good thing!).

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How To Obtain Low Dose Naltrexone For Treating Fibromyalgia
'Self-Care' Sunday ~ 1/29/2017

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11 Comments

  • Reply Christianne McCall January 31 at 11:03 am

    Do you get yours from a regular MD or do you see a naturopath? I did try LDN last year for 3 months, but gave up after I didn’t get any results.

    • Reply kristine January 31 at 1:25 pm

      Hi Christianne! I told my Dr. about LDN, and gave him the research on it. It has to be ‘compounded’, which means that the Pharm companies do not have patents on it yet. Which is GREAT, because it keeps the cost low. The only drawback, is there are only a handful of compound pharm in the country. But that’s no big deal, you just have to order over phone and recieve in mail. However a RX from a licensed Dr. is necessary.
      LDN can take anywhere up to 6-12 mo. to work for some people. I would be more concerned with getting the dosage right though. There seems to be a ‘magic’ number that is different for everyone. Like I mentioned, 3mg is average, but my results became dramatic when I went up to 4mg.
      Good luck! πŸ˜‰

  • Reply Gena Fausel January 31 at 8:09 pm

    How does it compare to Gabapentin ?

    • Reply kristine January 31 at 8:33 pm

      Sorry Gena, I am not familiar with that medication. You would have to ask your physician. Good luck πŸ™‚

      • Reply Cat aka TimeyWimeyGirl7 February 1 at 11:10 am

        Gabapentin seemed to me to be similar to Lyrica in how it works without the pesky weight gain side effect.

  • Reply Nikki February 6 at 3:14 pm

    I certainly hope that more people will be able to find what you have with the Naltrexone! I’m so happy that it has helped you and that you have been smart about it, the information that you are sharing can help so many others. Kudos to you, I’m giving you a standing ovation! Keep it up! And congrats!
    Nikki recently posted…How to use Pantone’s Color of the Year- Greenery In Your DecorMy Profile

    • Reply kristine February 7 at 9:48 am

      Thanks Nikki πŸ˜‰ The only way most people are going to hear about this is through word of mouth since the drug companies aren’t making it (hence the reason it needs to be compounded in a pharmacy). But, like I said, that works to our advantage! Have a great week πŸ™‚

  • Reply Sheryl February 7 at 9:11 am

    This is very interesting – my rheumatologist isn’t familiar with it beyond use for addiction purposes. It isn’t a common drug here in hospitals. Although I probably can’t try it anyway (as I can only take opioid painkillers…so not sure how that will get along). Following your experiences and looking forward to more information!

    • Reply kristine February 7 at 9:45 am

      Hi Sheryl! Yes ‘High Dose’ Natrexone is used for addiction. But ‘Low Dose’ helps to bring the immune system back to homeostasis and healing. For addiction it is approx 50 mg a day, but for treatment for immune disorders/FMS/MS ect. only 1.5 – 4.5 mg is taken. So you can see it is a SIGNIFICANT difference in dosage. This is why side effects are usually only vivid dreams and/or insomnia. However these usually clear up in a few weeks.
      Unfortunately LDN will NOT work if you are taking ANY opioids at all, as the drug is an ‘opioid receptor blocker’. Good luck to you Sheryl!

  • Reply Brittany W February 10 at 8:20 am

    It’s great that you began to see results right away! I have heard mixed things about LDN so it’s great to read a personal perspective.
    Brittany W recently posted…Chronic Coffee Chat 2: Let’s Feel BetterMy Profile

    • Reply kristine February 10 at 4:28 pm

      Thank you Brittany. I really do have to wonder about the ‘time’ and ‘dosage’ issue with LDN. Not saying it really doesn’t work for some, its just weird as to why that would be. Have a great weekend! πŸ™‚

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