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Fibromyalgia’s Trio Of Pain ~ Effective Ways To Cope

The three main pain components of Fibromyalgia are; Hyperalgesia, Allodynia, and Paresthesia.

Fibromyalgia’s trio of pain although different in definition, all share a common characteristic. That commonality is pain! The very name ‘Fibromyalgia’ means ‘muscle pain’ (fibro-fiber / myo-muscle / algos-pain). There are however, a few subtle differences between the three.

Fibromyalgia’s Trio Of Pain

  1. Hyperalgesia ~ simply put, it means ‘heightened pain response’. An experience shared by every person with FMS. It is a ‘exaggerated pain’ response to stimuli produced in the brain (listen to a FMS patient when they stub their toe compared with the average person’s reaction. Chances are you’ll be introduced to a creative phrasing of words you never knew existed). This exaggerated response can occur even in the absence of  a catalyst for pain (the brain is receiving incorrect signals from nerves in the body that tell it conditions are present that require a production of pain chemicals).

  2. Allodynia ~ a hypersensitive reaction to ‘touch’. Many FMS patients have painful skin. The normal pressure associated with a simple touch can produce pain. Hugs can be dreaded, massages sound like a form of specialized torture, and even where a person’s clothes touch their skin can be at times unbearable.

  3. Paresthesia ~ prickly, crawly, pins/needles. Often a person with FMS will feel the fizzy sensations of a limb that has fallen asleep. If I am still and quiet, I can feel as if the blood is ‘humming’/’vibrating’ in my body.

Fibromyalgia's Trio Of Pain; Hyperalgesia, Allodynia, Paresthesia... Click To Tweet

 

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The question is, how do we manage this pain effectively? Look, I’m not re-inventing the wheel here. I received a message recently from a former subscriber letting me know the reason they would no longer follow this site, was due to the lack of new information. In other words, I was not “…informing them of anything they did not already know”. Well, no, I’m not. If I knew the answers to how you could cure your FMS and be free from all pain, I would be typing this post looking out over the Pacific from my private estate, while sipping on a Pina Colada.

Sadly (not really!), I’m still in my PJs, looking out over 22nd street in the desert, and working down a home-brewed iced coffee (cause Starbucks ain’t gettin’ my $5 for something I can make better myself!). And you know what? I’m blessed, privileged, and more than happy to do so. I’m honored that you would spend your time here reading about what helps me, and what I in turn (with the hope that it will help you as well) love sharing with you!

Fibromyalgia’s Trio Of Pain ~ Effective Ways To Cope

A Few Ways Of Coping With Chronic Pain I Find Effective... Click To Tweet

A Few Ways Of Coping With Pain I Find Effective*

  • Hot Epsom Baths ~ I LOVE ME SOME SCALDING HOT SOAKING TIME!! This also helps with my RLS. I don’t know why, it just does. {Do be careful with ‘lovely smelly stuff’ in the tub. UTI’s are a plague to me, probably because of this very reason!}

  • LDN ~ okay, I still have not tried it yet. It is, however, on the agenda when I see my doctor in a few weeks. I really believe in this medication. SO MANY women I have read about, and talked with personally, find this to be the single most effective weapon in their pain relief arsenal. {more to come on this!}… *Check out the bottom of this post, where there is information on an upcoming webinar with Dr. Handler at LDN Doctor. {You can submit your questions to be answered on the air!}

  • Self-Care ~ it cannot be overstated that those with chronic pain MUST practice effective self-care on a consistent basis. If you feel selfish doing so, look at it like this: Taking time to do what is best to manage your chronic illness really IS for everyone else in your life too! They will reap the benefits of a good self-care routine as much as you do. You will have more for them because there will be enough for you. Otherwise…

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*MEDICAL DISCLAIMER: The contents within this website are not intended to diagnose or treat any disease, or serve as a substitute for medical advice. Please consult with your advising physician for any disease and/or disorder you are experiencing.  A Life Well Red, shall not be held liable or responsible for any misunderstanding or misuse of the information contained on this site or for any loss, damage, or injury caused or alleged to be caused directly or indirectly by any treatment, action, or application of any advice discussed in this site.

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~ The Fallen ~ July 7, 2016
Fibromyalgia Acknowledged / 3 Sure Remedies That Will Lift A Discouraged Heart

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18 Comments

  • Reply
    Sherrie Jarius
    July 7 at 4:37 pm

    Wow – This was not only a great piece putting our pain into perspective but you put “my theme song since high school” in it “!! Yes… King of Pain by the Police is one of my all time faves!! So appropriate… Its hard to explain this trio to someone especially the Parasthesia where parts of your body are incredibly itchy or it feels like you have bugs crawling all over you. I also have tinnitus really bad so not only do I BUZZ (or hum/vibrate) but I also fizz, crackle, and pop (sounds like a familiar cereal, no?). It can get kinda loud in here… LOL!!
    I truly appreciate your insight & experience.
    Keep it coming!

    • Reply
      kristine
      July 7 at 6:25 pm

      HAHAHA! LOVE IT Sherrie! 😀 So, ‘The Police’….RIGHT!?!? I had a HUGE crush on Sting when I was in HS! ‘D’ introduced me to The Police then, and I never looked back! LOL!
      LOVE the Rice Krispie analogy too! Hmmm….need to work that in somewhere (giving you full credit of course!).
      Thank you so much for your lovely comment Sherrie! Have a wonderful week 😉

  • Reply
    Rose
    July 7 at 11:11 pm

    Pray tell oh wise one, What is LDN?

    • Reply
      kristine
      July 8 at 9:26 am

      HAHA! Well, LDN stands for Low Dose Naltrexone. I have written an article about it here. Basically, it is a LOW DOSE version of a drug used to help people with opioid and/or alcohol addiction. However, they have found that this drug, taken at night before bed in lower doses, will block the natural opioid receptors in the brain. Then, by the time you wake up, the LDN is leaving your system at which time the brain realizes that it is not producing enough ‘happy chemicals’ that attach to the receptors (as well as realizing that something is not normal with the receptors) and will produce a ‘kickback’ or ‘uptake’ effect. This effect will produce more receptors and more ‘happy’ chemicals to see you through the day and help reduce pain/depression ect.
      Now, that is the ideal. However, it has been est. that LDN works on approx 60% of FMS patients. So it does not work for everyone, but those it does work for seem to swear by it. It also has a riculously low side effect factor. AND it is being used along side Wellbutrin as a weight loss aide.
      For more info. you can check out Low Dose Naltrexone.org. Thanks for the inquiry Rose! 🙂

  • Reply
    Sharon Hutchinson
    July 9 at 7:21 am

    I’ve been reading the Low Dose Naltrexone site and if even half of it is true, it would mean no more hydrocodone, no more anti-anxiety drugs and help in keeping cancer at bay (if indeed I really had it in the first place) for me. I wonder why my pain management doc never mentioned this medication. Maybe having severe depression makes him wary of prescribing it for me, or fear of severe withdrawal symptoms if I were tapered off my other meds. Let me state that he meets all the requirements of a healer as well as doctor, so that isn’t the problem.

    The only thing that bothered me is that it all sounds too good to be true. Why I say that is when Topamax came out, I was started on it and within two weeks became a severe paranoid schizophrenic. Won’t go into details but my life became miserable to where leaving the house and begging my husband not to go to work and leave me alone disrupted both our lives. When Topamax was stopped, within days I had recovered from this severe reaction to the drug. So I am a bit leery of drugs, since Topamax had been considered a “wonder drug” for many conditions.

    But at this point, I’d be willing to try it. A big concern is having to withdraw from my other meds. Years ago I was withdrawn from low dose Methadone (taken for severe pain that most of us know all too well). The doc (not the one I now go to) put me on a schedule and said it would take about 2 weeks. It took 2 1/2 months total and almost every day was a living nightmare. Next visit, though, I am going to ask him about this.

    I cannot thank you enough for providing this information. It may prove to be nothing, but on the other hand, perhaps it might be the miracle I am looking for.

    • Reply
      kristine
      July 9 at 12:02 pm

      Sharon, I am so, so incredibly sorry for what you’ve been through…sigh…yep, drugs can do so much good (and have! I think about this everytime I get an infection that is easily treated with an anti-biotic), but the truth is that they can also cause unbelievable harm.
      I cannot imagine the hell you and your husband went through with Topamax. Terrible.
      It’s true, LDN does NOT work for EVERYONE. Although, and this is in no way backed up with evidence/only my experience, I have not come across anyone yet who has had a negative reaction to LDN. Only a ‘neutral’ reaction where it just did nothing for them. That being said, there is no telling how a person’s individual body will respond.
      It does not suprise me that your Dr. never mentioned it. Right now, the Gov’t does not own a patent on LDN. Many Dr.’s do not know about it, and many Dr.’s don’t give it any credibility. It is not available at your local pharmacy, it is avail. only through certain compound pharms that make the drug (I know of the one in Co.). That is why it only costs aroun $30 a mo. at the moment, because the big drug companies don’t have exclusive rights to it yet.
      I am including a link to a youtube vid. from the people who discovered LDN’s use for treating pain management. Very informative and objective. Good luck to you Sharon, I hope it will be what you need ♥ LDN VIDEO

      • Reply
        Sharon Hutchinson
        July 11 at 6:42 am

        Thank you so much. I would be willing to give this a try, especially since the government is making it so difficult for pain specialists to prescribe Schedule II medications. It’s a long story but my immune system has become very weak and is only now recovering. I will certainly share what I can with him as he is always open to new ways to alleviate pain. He is one of those rare gems who also prescribes nutrition (he is really big on the use of blenders in creating healthy combinations of natural foods), uses thermography instead of or an adjunct to x-rays, and was the first in my area to provide IV Ketamine treatments for RSD patients. I’m sure he will look into this.
        I have a friend who has MS that is progressing at an alarming rate. So this will be shared with her as well. You have done a tremendous service in bringing LDN to the attention of those of us who struggle on a daily basis. My only fear is, as you have stated, the pharmaceutical firms. They will swiftly raise the price to where it is unaffordable as the possibility of third-party insurance companies refusing to pay for a “new” medication could become an issue. But we can hope–and sometimes hope is all we have to cling to.

        • Reply
          kristine
          July 11 at 9:17 am

          You are welcome Sharon, and I forgot to put in a snippet of info sent to me this weekend by Leah @ LND doctor. Please look back at today’s post. I am going there now to insert the info. Thanks!

  • Reply
    Ggmandy
    July 9 at 5:53 pm

    IF it’s OK with you I may li k this article to my series Fibromyalgia is Real, unless you would prefer to just be a guest writer.

    • Reply
      kristine
      July 9 at 8:09 pm

      Please feel free to link up the article. Thank you! I would only ask that you would not copy/paste the full article, but using an excerpt and a link back to my site is completely fine (and GREATLY APPRECIATED!) ♥Thanks again GiGi! ♥

  • Reply
    Pippit Carlington
    July 11 at 4:16 pm

    This was the perfect combination between personal experience and technical information. As for the person who unsubscribed, well it’s their loss. You just got another subscriber. 🙂

    I find the information on Low Dose Naltrexone very interesting! I bet they are doing a number of studies on it in various research centers. Check PubMed to see what you migt be able to link to for future posts.

    • Reply
      kristine
      July 11 at 7:24 pm

      HAHA! Thanks Pippit! I appreciate it very much 🙂 Hey, take a look at the bottom of the post I published today, there is new info on a online Q&A with a LDN doctor. Looks interesting! Have an ‘excellent one’ Pippit! 😉

  • Reply
    Nikki
    July 12 at 2:51 pm

    Girl, I come back each week because I love that you are drawing attention to chronic disease. And I learn something new every single week. As well as learning new things I’m reminded of things that I may have forgotton in my chronic disease care. I don’t have fibromyalgia, but a lot of our symptoms are the same with chronic disease. I am a huge fan of a hot bath it relieves the pain in my legs before bed each night so I can sleep. I keep forgetting that I have Epsom salts handy to help out, thanks for the reminder. There you go you reminded me of something that I should be doing. You are my chronic disease superhero. XX
    Nikki recently posted…Social Media Blast-Just Pin It!My Profile

    • Reply
      kristine
      July 13 at 4:31 pm

      HAHA! Yes, and my ‘super power’ is ‘sleeping while awake’! (at least that’s what fatigue feels like sometimes 😉 ) Be sure to get the ‘store brand’ epsom salts. I’ve noticed that they have come back a little ‘trendy’ with a ‘trendy’ sticker price! But, the store brand is relatively inexpensive. THANKS NIK! 🙂

  • Reply
    Deborah Davis
    July 18 at 11:59 am

    My friend has been living with Fibromyalgia pain for years. I have sent her this post to read. I am sure it will be helpful to her. I am so delighted that you shared Fibromyalgia’s Trio Of Pain ~ Effective Ways To Cope with us at the Healthy Happy Green and Natural Party! Thank you so much for sharing your gems and for your support! All the best, Deborah
    Deborah Davis recently posted…Naturally Speaking Interview: Vegan Coach and Personal Trainer Ramona CadoganMy Profile

    • Reply
      kristine
      July 18 at 12:29 pm

      Thank you Debroah! Fingers crossed for you friend ♥♥

  • Reply
    Brandi Clevinger
    July 21 at 5:44 am

    Like that song!

    I suffer from all three as well, and even though it’s not new to me, the formal names are new. And even though a lot of fibro bloggers don’t write anything new, the way each of us write and give our perspective is unique. I find comfort in knowing that there are others experiencing the same thing as me.

    Those are effective ways to help relieve fibromyalgia symptoms, but I don’t know about LDN. My physician is not familiar with it, so she is doing some research before giving her opinion on the matter. I like that about my physician. Researching before saying what she thinks is best or not.

    Thank you for not leaving us to live in your private estate overlooking the Pacific Ocean! Although, I will take that Pina Colada! haha

    • Reply
      kristine
      July 23 at 2:18 pm

      HAHA!! Well, if I were to come into an ‘obscene’ windfall, I would still write!…Just with a different ‘scene’ outside of my living room window 😉

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