How impacting is it when someone in your life actually acknowledges your Fibromyalgia?
To have Fibromyalgia acknowledged by someone you care for in your life can have a huge impact. Recently, someone I love was talking to me about something physically painful to them. I asked them to give me a comparison so that I would be able to understand the level of pain they were referring to. They said, “Well, you would be able to handle it better than I did since your pain tolerance is so high. You know, because of what you endure everyday with Fibromyalgia.”
Wow. I don’t think they realized what that meant to me. Not only in the fact that they helped to legitimize an all too real struggle based soley on those two sentences, but that they actually remembered the name for it! How many times do we hear, “What’s that thing you have? Febromalchy, Fibomening…what is it again?”… No one ever mispronounces arthritis, or diabetes.Having your FMS acknowledged by someone you care for can have a huge impact... Click To Tweet
Truthfully, that’s completely OK with me. I know it’s not their struggle. I really don’t expect them to remember every detail that pertains to my health and wellness. As human beings, we are limited to the boundaries of our own mind and momentary experiences. It takes an effort to focus on others, and commit their personal details to memory. We usually have more than enough to deal with in just dealing with ourselves.
Fibromyalgia patients in general learn to ‘keep it to themselves’. In fact, I try very hard not to show any signs of discomfort just to avoid the questions that follow. Explaining FMS after being asked, “What’s wrong with you?”, usually turns into an exercise in ‘defending’ myself and my condition…no thanks. Which is why it was a simple, yet lovely thing to know this person cared enough to ‘remember’.Explaining FMS usually turns into an exercise of 'defending' myself and my condition... Click To Tweet
Fibromyalgia Acknowledged / 3 Sure Remedies That Will Lift A Discouraged Heart
Lower Your Expectations ~ do not anticipate being the center of everyone else’s universe. Each individual is trying the best they can to cope with their own unique junk. Try not to take it as a personal offense if they can’t remember the name, or full nature of your condition. Maybe it’s enough that they are even asking about it.
Find Legitimacy In Your Own Experience ~ find a way to come to terms with the ‘reality’ of FMS. It may not feel good, but the truth is, it does not matter if someone does not believe FMS is an actual disease. You’ve got it, you know it’s valid…now ‘rock’ it as best you can!
Appreciate The Crumbs ~ there are times when you will crave the full meal of ‘validation’. Meh. So they don’t ‘get it’ as much as you want them to…really, it’s not necessary. And you don’t need them to. Practice thankfulness for anything people are willing to give you. Sometimes suffering quietly with dignity, can make you a better person. The ‘internal battles’ are the great ‘warrior creators’ of our lives.
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