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The Cycles Of Fibromyalgia: Progression, Regression, Remission

Do you ever wonder if your FMS will get better or worse over time?

I have had personal experience with the cycles of Fibromyalgia: progression, regression, remission. In fact, I have found that it is not uncommon to experience all three within a relatively short amount of time.

Of course, we all want to hear that there is the possibility that our FMS will eventually go away. Well, that is always a possibility. Personally I think it may have to do with what caused your FMS in the first place.

Therein lies the problem. Fibromyalgia as a singular disease has yet to be completely defined and recognized. Until then, all we can really go on is our own, and other’s personal experiences.

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The Cycles Of Fibromyalgia: Progression, Regression, Remission

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There have been those who find their FMS symptoms decrease dramatically due to:

  • gluten avoidance

  • magnesium supplements

  • LDN

  • ‘clean eating’ diet/avoidance of certain ‘triggering’ foods

Most people will feel a fluctuation in the severity of symptoms. Even a cessation for a period of time until the pain returns.

I can have long stretches of time where I think perhaps my FMS is going away. Then seemingly out of nowhere, the pain and fatigue returns.

In my case, I believe this happens when my Epstein Barr is triggered, and I experience a ME flare.

A two-year observational study conducted by the NCBI found this to be a common occurrence among FMS patients. Basically the disease will simply ‘wax and wane’ over the life span of the individual.

Our best option is to keep searching for the methods (or combinations thereof) that reduce our symptoms and flares as much as possible.

What method of treatment do you practice that brings the best results?

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12 Comments

  • Reply
    Valerie
    April 6 at 10:58 am

    When possible I do a little and rest, do a little and rest, hoping to avoid repercussions of overdoing. If I have something planned like lunch with the girls, I will rest more and eat very carefully (IBS) for 2-3 days before. This helps unless I am in a flare time and then nothing seems to help. I try to watch things that make me happy. I steer away from most news, and tv is mostly feel good programs. I feel it keeps stress at a lower level. I had to get used to doing less for my health. I see that many people who have FMS and Chronic Fatigue and the other maladies that go with them, like sensitivities and intolerances, had had very active busy lives. It took me a while to accept that, but once I did I made it much easier on myself. I am sad that others have this to deal with but I am glad to have this opportunity to read and interact with others who really know how it feels. Thanks Kristine.

    • Reply
      kristine
      April 6 at 9:10 pm

      Boy! I know EXACTLY what you mean about the news Valerie! I have to steer away from Facebook and Instagram during those times as well! So glad you’re here! Love hearing from you πŸ™‚

  • Reply
    Julie
    April 7 at 10:14 am

    First, I’d love to hear an update on how LDN is working for you. Still seeing a marked decrease in your pain?

    As to what works for me, I eat a very healthy (well..except for those sweet cravings) diet and try to exercise 3 times a week. Pilates has been a godsend for me. What other workout can you do laying down??? I also know where I want to be in life where I can focus more on my health and less on making a living – and I am actively working towards that life that I want. This keeps me positive and gives me purpose. I also can see a love life again in my future. When you have a chronic illness you start to believe that you are broken and no one will love you or they will think you’re too much work. I know there’s someone out there who is understanding of my illness and forgiving of my shortcomings because of the illness. I just have to kiss a bunch of frogs…:-)

    • Reply
      kristine
      April 10 at 10:38 am

      Hi Julie! The LDN is still working! Along with an herb I use so I can get a good nights sleep, my pain levels are down significantly! Thank you for asking πŸ™‚ Keep kissing those frogs πŸ˜‰ β™₯

  • Reply
    Brittany W
    April 10 at 9:24 am

    I don’t have fibromyalgia, but I have a lot of friends who do. Different things work for them and all kinds of different things cause flares. It’s such an individual disease!

    • Reply
      kristine
      April 10 at 10:35 am

      It is Brittany! It’s all ‘trial & error’! Thanks β™₯ πŸ˜‰

  • Reply
    Kat
    April 16 at 3:16 pm

    I don’t have fibromyalgia, but I definitely notice a similar waxing and waning of cycles with my chronic illnesses (mainly h EDS and Chiari Malformation.) Thanks for sharing!

    • Reply
      kristine
      April 17 at 10:45 pm

      Hi Kat! The ‘cycles’ can definitely pertain to an array of chronic illneses. Thank you for your comment πŸ™‚

  • Reply
    Karen
    April 21 at 4:20 pm

    There are cycles! I have had CFS since I was 16 years old (1969) and my Fibro was formally diagnosed in 2002, but I can point to symptoms back in the mid-1980’s. I truly don’t remember what it is to live without the fatigue and pain – and planning for it.

    The best thing that’s happened was when I did food allergen testing in 2002. The immediate effect was that I no longer have IBS attacks. That alone is enough to keep me on the diet. (For the most part – but there is chocolate!)

    • Reply
      kristine
      April 21 at 5:15 pm

      Awesome Karen! So glad IBS is no longer an issue! πŸ˜‰

  • Reply
    Janice Pollard
    May 19 at 9:14 am

    Hi, I developed FMS when I turned 70 and had a knee replacement. I believe the stress from the surgery brought on the FMS. At 70 it was very hard for me to deal with. Changing your life at that time is not easy. First I totally slowed down–but started Tai Chi. Then I cleaned my cupboards out (food for the county loves me) and now eat clean. Then worked on stress level–first thing off was the TV and started to listen to relaxing music .. Meditation also seems to help me. But when you have a flare up not much helps me but rest Love reading about other people who have FMS and what they do for it.

    • Reply
      kristine
      May 19 at 11:40 am

      HI Janice! Thank you so much for sharing this! Tai Chi is always something that has intringued me. It’s SO beautiful! I wish we had people doing TC out here in the parks, I would TOTALLY join in! β™₯β™₯β™₯

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