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Being Defined By More Than Your Disease

Are you struggling to see the forest beyond the trees?

To be defined by more than your disease can be equated with this metaphor.

The expression ‘Can’t see the forest for the trees’ is applied to one who cannot see past the details of a problem in order to see the situation as a whole. Chronic illness is often like this.

It is easy, especially after first being diagnosed, to focus almost exclusively on your disease. This is not necessarily a bad thing.

Danger looms near when a person never really moves beyond this initial stage.

Providing the illness is not severely debilitating, or a source of almost intolerable pain, it is vital to move your attention beyond the disease to the other pieces that make up the puzzle of your life.

Danger looms near when a person never moves beyond focusing on their chronic illness... Click To Tweet

Being Defined By More Than Your Disease


I came to this realization about a year after being diagnosed.

I became cognizant of the fact that the majority of my thoughts were centered around my chronic illness. My life was consumed with: how I ‘felt’, every ache & pain, the impact it was having in my life, each & every symptom…

In short: I was becoming a ‘bore’.

I was laser focusing on ‘myself’ and my situation to a point where it was all I spoke or thought about.

This was not good. Neither for myself, or for the other people in my life.

Therein lies a ‘tricky’ area for those of us living with chronic illness: maintaining the health of our relationships.

Even the most supportive of people are stretched to the limits of their patience when all of our conversations become a platform for talking about ourselves and our disease.

It comes down to ‘balance’.

And ‘balance’ is the next phase of advancement for the chronically ill.


In the spirit of balance, you will see a change soon here at ALWR.

I want to move from a focus on ‘symptomatic control’, to a look at life ‘overall’ with chronic illness.

A ‘lifestyle blog for those living with chronic illness’ if you will.

I will be offering catagories relating to VARYINGΒ aspects of our lives, not just being sick.

Here’s a ‘sneak peek’!:

Being Defined By More Than Your Disease & A Sneak Peek At What’s Coming To ALWR!*

Categories to include: Β ‘Health & Wellness’ ~ (where FMS and CFS/ME will continue to be explored and dealt with)

Β ‘Food’ ~ ( health promoting recipes will be shared, along with articles pertaining to the benefits of certain foods that contribute to the health improvement of Fibromyalgia patients)

‘Beauty’ ~ (because femininity need not be sacrificed on the altar of chronic illness!)

‘Home Decor’ ~Β (we spend a great deal of time in our homes, and a positive/visually appealing environment is paramount to ‘feeling good’)…

Plus, more to come!

I’m very excited to continue this journey with you, and to explore what life has to offer us in spite of being chronically ill!

We ARE so much more than our disease!

*Any ‘categories’ or ‘interests’ YOU would like to see included?…Lay it on me in the comment section below!

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  • Reply
    April 13 at 12:04 pm

    YAY! I am SO excited about the new direction for this beloved blog of yours! Maybe something about hobbies/activities/passions? I’ve enjoyed your gardening posts. . .well, actually, I enjoy all of your posts! Many thanks for being an integral part of my journey!
    Jennifer recently posted…LET LOVE SPRING – Review and Give Away!!My Profile

    • Reply
      April 14 at 9:58 am

      Thanks Jennifer! I’m excited too! I have to get a few ducks in line first before I launch the new ‘theme’, but it should be coming within the next month. Also, I was thinking the same thing avout hobbies. Great suggestion! πŸ˜‰

  • Reply
    April 13 at 3:02 pm

    Great share and best of luck. As I read your share I kept thinking about my mother and little sister. They deal with illnesses of their own and can’t seem to find any joy in life because of them. I can only imagine but I also believe in finding some good in all circumstances. With so many options today, so many support groups etc… I can’t understand sitting in daily despair. I always send them my best wishes and hopes but rest is up to them. Glad you saw you need to make some changes and took a leap of faith.

    • Reply
      April 14 at 9:55 am

      Thank you Mari, best of luck to your mom and sister πŸ™‚

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