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Approaching ‘Zombie’ Status ~ FMS and Insomnia

July 30

To myself I say, “Good luck with this post”.  To you dear reader, I say, “I apologize in advance”.  You see, I have had a total of 5 hours (non-consecutive) sleep in the last 52.  I’m starting to feel half dead, yet I can’t sleep.  I’m tired, but there is no natural state of ‘shutting down’.  So, guess when a good time to write about irregular sleep patterns and fibromyalgia is? YUUUP! You guessed it, right now!

annoy

It’s kind of a ‘chicken & egg’ thing.  Some researchers believe that poor sleep is one of the conditions to bring on FMS, while others argue it is the FMS that causes sleep disturbance.  Two contributing factors to FMS patients experiencing broken sleep are; pain (which wakes us up) and cognitive abnormalities which create an ongoing ‘jerk/wake’ response.  You know that feeling you get when you fall in your sleep and jerk awake? Yeah, we get that…all night long.  To be honest, I haven’t slept a straight 6-8 hour stretch in years.  I can feel it when it gets bad.  If I wake after 2 or 3 hours, I feel a weird all over pain/ache like having the flu really bad.  This waking response also prevents us from ‘deep/slow’ sleep essential for REM and the restorative activities the body performs while your system rests.  Kind of a ‘catch-22’ thing, wake because you hurt and hurt because you wake, feel tired as hell but can’t fall asleep.

whin Someone call me a ‘WAAAAAHMBULANCE’!

How do all you ‘Chronic Painers’ out there deal with this?  Any sage techniques to employ?  Drop a comment and let me know!

Insomnia and fibromyalgia

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Recipe Of Week #2

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~Barefoot Contessa’s Tuscan Mashed Chickpeas~

chickpea4b

~1 can garbanzo (chickpeas) rinsed and drained

~1/8 cup chicken stock

~1 tbsp. olive oil

~1 diced tomato

~1 clove minced garlic

~1/8 cup fresh grated parmesan cheese

~2 Tbsp fresh chopped flat leaf parsley

Coarsely process chickpeas and chicken stock in food processor.  Heat oil in pan and sauté tomato for approx. 4 min till tender.  Add garlic sauté for 2 min.  Add chickpea mixture and heat through for 6 min.  Remove from heat, add cheese and parsley.  Salt and pepper to taste.

Serve with olive oil brushed toasts, gluten free crackers, vegetables, or use as a sandwich spread.

chickpea3a

 

 

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23 Comments

  • Reply Sarah C July 31 at 4:36 am

    This sounds great!

    • Reply kristine July 31 at 11:51 am

      Thanks for stoppin’ 🙂

  • Reply Steph July 31 at 6:02 am

    I love chick peas, but haven’t tried anything like this before. I think I have everything on hand, so this might need to be a snack this weekend! Thanks for sharing your recipe.

    • Reply kristine July 31 at 11:52 am

      Do try Steph! It’s good 😉

  • Reply Marla July 31 at 1:16 pm

    Hi Red,
    I have been were you are and it is not a nice place to be. Sleep is so important in our lives but when your body wouldn’t let you and you have tried everything what do you do? I always find it amazing how dr’s can’t decide what causes what – not enough of sleep causes the pain or pain cause lack of sleep. You cares! just stop the pain and help find and answer to help you sleep.
    Thanks for sharing the great recipe on Real Food Fridays – sounds so healthy and tasty! Pinned & twitted.

    • Reply kristine July 31 at 1:54 pm

      Ha! Ha! So true! 🙂

  • Reply Shannon August 1 at 4:58 am

    Hello there, nice to meet you Kristine!
    The Painsomnia Fibro sleep cycle sucks doesn’t it?! I have a brutally nasty one myself. It usually goes like this: 1 week or two of #painsomnia related “sleep” where I am lucky if I can stay asleep for 3 consecutive hours. Followed by 1 week or so of catch up sleep (gotta pay that sleep debt!) where all I can do is sleep. Still not more than 3 consecutive hours, if I’m lucky. Then the fun starts! 1 week or so of can’t stay asleep OR awake. 1 week of sleeping 16-20 hours a day, still not more than 3-5 hours consecutively.

    It’s a vicious cycle! Top all the above off with a backwards circadian sleep cycle – sleeping mostly in daytime hours. I “can” sleep during the night. But inevitably, my patter will re-assert itself and I’m back to sleeping in the daytime.

    Then add 119/hr sleep apneas and a CPAP machine (that isn’t working at moment *sigh) that makes me sound like Darth Vader. “Is that you Luke? I was trying to sleep!”

    Except last night, I somehow managed 8 hours of sleep (I have an app that tracks it, FibroMapp). Not consecutive. I woke up at least twice to pee. lol

    I’ve tried nearly everything you can think of. Light therapy on my monitor (if I’m awake, I’m at my computer) https://justgetflux.com/, sleep hygiene (tidy and darkened sleep space), mindful meditation before sleep, yoga (when I could still do it) and I can’t think of what else at the moment. The BEST thing, for me, when I’m really desperate for sleep, is mindful meditation. The best is a guided meditation where someone walks you through a relaxation meditation made for sleep or deep relaxation. Literally telling you what to relax, and where. It’s quite helpful. Even if you only get to lay down for a half hour, it is time well spent.

    Honestly, sleep when you can and don’t stress about the rest. I listen to my body. If I’m tired, I sleep. And that sounds great, but it doesn’t always work out despite my best intentions lol. If you have kids still at home, I just can’t imagine being a full time mom on top of everything else I have to deal with.

    Sending happy, healing and loving energy your way today! #spooniehugs
    Find me at http://www.livingwithfibromyalgia.ca and @LWFMCA

    • Reply kristine August 1 at 11:50 am

      Hi back at ya Shannon! Thanks for all the great advice! Thankfully, my last one left for his own apartment 2 months ago, so I agree with you it would be tough for all those full time moms out there. Appreciate you taking the time to help me out 🙂

      • Reply Shannon August 1 at 5:15 pm

        No worries Kristine. Fibro is a nasty beast that everyone experiences differently. If I could help one person endure, cope or otherwise deal with part of their Fibro symptoms, I’d call it a FANtastic day. Thank goodness for the internet and social media. Without them I’d have been in a very deep and dark place indeed. Instead, I’ve met some wonderful people who truly understand what it’s like to live with Fibro and chronic pain (#FibroWarriors Unite!). I’ve also learned that I must be my own advocate, go hard at learning about this disease and how to help my doctor help me cope with it. Thankfully my previous doctor and I did all the legwork, it’s more maintenance now.

        Knowledge is power. Especially when you have a wishy-washy doctor who is afraid of prescribing pain meds. Talk to your pharmacist, get them on board with helping to find the right medication cocktail for you, etc. If you empower yourself with this knowledge, your doctor will have a more difficult time wearing you down or refusing you when you slap them with the facts. Just saying. I hear so many #spoonies talk about how their doctors are not supportive, don’t believe FM to be real, or simply refuse to prescribe pain medication. It makes me feel stabby.

        The best thing anyone ever told me (my previous doctor) was to not expect to be completely pain free. Rather, to expect to have this chronic pain for life and that it could even get worse. Not that we should look at that as a negative, but as a cold hard fact. My pain medication is sufficient to make me mostly comfortable, but not pain free. To expect to be pain free is unrealistic.

        I highly recommend visiting Cort Johnson’s site for the latest and best news about Fibro and CFS. He suffers from both himself. His articles are fantastic, and he even tracks down and references studies. It’s the best resource on one site I have found to-date. He’s now got a fairly active message board on the site too. It’s more information sharing than a support group (which tend to be pity party heavy if you know what I mean). I also have some resources, many are Canadian specific, on my links page.

        http://www.cortjohnson.org
        http://www.livingwithfibromyalgia.ca/links

        Blessed be and may you be having as fantastic a day as possible 🙂

        • Reply kristine August 1 at 7:16 pm

          Thanks again Shannon! Have great day 🙂

  • Reply Shannon August 1 at 5:03 am

    Oh! You can find tons of FREE sleep meditation videos on Youtube.
    Here’s my personal fave loving kindness mantra (said in your head while not listening to a guided or lead meditation)

    I am free from inner and outer harm,
    I am peaceful and happy,
    I am healthy and strong,
    I take care of myself joyfully.

    Loving Kindness meditation is also something worth looking into. The above is said for yourself, then said for a “challenging” person in your life, for a mentor or important person in your life, for a loved one, and then for the world. “May you be free from …” etc.

  • Reply Nancy Andres August 1 at 4:03 pm

    Sorry to learn of yours sleeplessness. I have faith you will find a way to deal with it that makes you feel better. It helps me to breathe into situations I don’t have answers for by telling myself I don’t have a solution YET. That “yet” opens me up to possibilities and I have hope. Total lifestyle habits do impact sleep and comfort in our bodies. One thing you might investigate is your eating plan. Try going from animal sources of foods to whole food plant based foods and observe what happens in your body. Think many of the others who responded offer good ideas as well. I’ll keep you in my prayers. Nancy A @obloggernewbie.blogspot.com.

    • Reply kristine August 1 at 4:34 pm

      Thank you Nancy, will keep in mind~

  • Reply Jan C August 3 at 6:56 pm

    I’m with you every day/night. Not only is fibro part of me. My flipping brain fell out the bottom of my skull. (Arnold Chiari) with a side of congested spine highway ( syringomyelia). It did cause me to lose feelings my left upper quadrant so I don’t feel fibro there. So I 3/4 fibro pain with the excruciating pain of ACM, SM & IIH (inter cranial hypertension) I’m a rare specimen of life. The brain stuff causes my body to jerk, fibro causes it to jerk. What is deep sleep? I’d scream for a winebulance but my meds would not allow it. So I nap sitting up in chair, standing up, leaned against a wall, or at patio table. I don’t drive on bad days or I might park & nap where ever. My favorite time is a week in my husbands semi. I sleep in the bunk and listen to books on tape or watch the states roll by. I’m not sure there is anything I can offer that’s not already out there for sleep remedies but I feel for you. Blessings

    • Reply kristine August 3 at 9:30 pm

      Thank you so much for sharing all that Jan. That sounds really really tough! Not sleeping just exacerbates everything, and with no ‘wine’ that’s a double punch 😉 Glad you and your husband can be on the open road together though, that’s a good thing. Have a wonderful day and good sleep and blessings to you too! 🙂

  • Reply Brandi Clevinger August 4 at 12:35 pm

    Yep! I know exactly what you mean! And it’s amazing how I can think of nothing important until the moment my head hits the pillow. Then I’m wide awake with all sorts of things buzzing around in my head preventing me from sleeping. Ugh…the never ending cycle.

    Thank you for sharing your post and recipe at #ChronicFridayLinkup! I pinned your post to the Chronic Friday Linkup board at http://www.Pinterest.com/beingfibromom

    • Reply kristine August 4 at 1:46 pm

      Ha! Ha! Too true!

  • Reply Deborah Davis August 5 at 7:51 pm

    This delectable dish will make a great appetizer at my next Book Club meeting. The ladies will love it! I am so delighted that you shared your healthy and delicious Barefoot Contessa’s Tuscan Mashed Chickpea recipe with us at the Plant-Based Potluck Party Link Up. I’m pinning and sharing.

    • Reply kristine August 5 at 11:16 pm

      It is definitely good! Thanks Deborah! 🙂

  • Reply Jenn | EngineerMommy August 9 at 4:40 am

    I love chickpeas and have to try this recipe soon.
    Hope you can find some sleep sometime soon!

    • Reply kristine August 9 at 11:03 am

      I did Jenn! Thanks you and enjoy the recipe!

  • Reply Jenny August 9 at 1:03 pm

    Sounds delicious and great for a party dipper. My sister suffers from insomnia with her Fibro too a lot of the time. Bless you sending you good zzzz vibes. Thank you so much for linking up to Share With Me. #sharewithme

    • Reply kristine August 9 at 3:42 pm

      Thanks Jenny, glad to report there has been sleep since then 😉

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