As I go forward on my journey with FMS~ME/CFS, I learn new things all the time. Some are fairly predictable, and some take me by surprise. One of those things is how often it is necessary to defend having Fibromyalgia along with it’s symptoms. Do other’s have to do this? If someone has MS, RA, or Lupus, do they find themselves on the defense over their disease? It’s an honest question. I’m curious. Let me explain why.
Last night I was with a group of people including a friend of mine in her 20’s who has been recently diagnosed with FMS. She was sharing how her eyes have been giving her problems lately. She was explaining her extreme dry eyes and ocular muscle spasms, and as she went on I offered her the possibility that it was her Fibromyalgia causing the problems. She was interested that this might the case, and we set about to discuss eye issues in relation to FMS. Immediately someone in the group said with a hint of indignation, “I have dry eyes too! I get twitches too!” Like it was self-indulgent and absurd that I would be relating my friend’s symptoms to something so ‘minor’ as this ‘fibromyalgia thing’. (implication: this ‘make-believe’ illness) Then others in the room began coming up with different reasons why she would be having eye problems, and I thought, “Why can’t it just be because of her FMS?” I simply winked at her, and the subject was changed. But I took note of this. Why in the world are some people so offended by this condition? There are actually some fairly venomous rants on the web over this subject. So again I ask the question, would people do this over someone with MS, or Lupus, ect.? If they do, all my sympathy! Whack em’ with your spoon!
This is one of the many reasons I treasure the chronically ill community I have found over the past year. It’s important to share experience, get encouragement, and continue to educate and be educated concerning this ‘life of spoons’ we have been given. Here’s lookin‘ at ya kids!
Recipe Of The Week:
~1 Sara Lee pound cake
~seedless raspberry jam
~1 pckg of white chocolate morsels
~1 cup heavy cream
Cut pound cake in three long strips so you have three thin pound cakes. Cut those into bite size squares. Heat cream until hot (not boiling). Pour hot cream over morsels in a bowl and allow to stand without stirring for 3 min. Stir until smooth and cool to room temp. Assemble like petite fours with jam in between layers. Place bits on fork and spoon chocolate over top to coat. Place in refrigerator until set, and coat again till get desired look.